Official discharge from neonatal care

Today is a day of celebration in our household, for after 2 long years our daughter has finally been discharged from neonatal care. Born at just 24 weeks, she spent 150 days in 4 different hospitals before coming home in November 2019. She battled metabolic bone disease, chronic lung disease, sepsis and meningitis.

Fragility

There’s been so much focus on Covid-19 for so long that it’s easy to forget how a common cold can be just as tough for a preemie to deal with. What amounts to a snotty nose and a bit of a cough for most of us can be enough to land a preemie back in hospital on oxygen, antibiotics, nebulisers, steroids and worse.

Preemie reunion

Last Wednesday we attended a reunion of the preemie babies who were in hospital at the same time as our little girl. The last time these children were in the same room, they were all in incubators attached to sats machines. Now they are strapping 2 year olds, strutting their stuff and fighting over the Tiny Tots cars.

Childhood crises – what effect do they have on parenting?

How much do childhood crises like prematurity, illnesses and serious accidents influence the way we parent our children? It’s an interesting question and one that I’m thinking more and more about as my baby becomes a little girl.

Miracle girl

It was my little girl’s birthday this week. She technically turned 2, though if she hadn’t been born 15 weeks early, she wouldn’t have been celebrating her second birthday until October. It seems odd that she will forevermore have a summer birthday when she could easily have had an autumn one.

Guest blog from Ethan Ryan

Today’s post is a guest blog from Ethan Ryan whose son, Oliver, was born extremely prematurely during covid lockdown. Oliver very sadly passed away a few months after he was born and in this blog Ethan talks about how he helped his daughter, Rose, through her grieving process.

Preemie bumps and scrapes… Do they ever stop being triggers?

We took our ex preemie, who’s now nearly 2 years old corrected (see The corrected age conundrum for more information about corrected/adjusted age), to the zoo for the first time ever this week. A combination of her medical needs and issues, as well as covid restrictions, has meant we haven’t braved it until now, butContinue reading “Preemie bumps and scrapes… Do they ever stop being triggers?”