Today is a day of celebration in our household, for after 2 long years our daughter has finally been discharged from neonatal care. Born at just 24 weeks, she spent 150 days in 4 different hospitals before coming home in November 2019. She battled metabolic bone disease, chronic lung disease, sepsis and meningitis.
Tag Archives: preemie strong
Preemie reunion
Last Wednesday we attended a reunion of the preemie babies who were in hospital at the same time as our little girl. The last time these children were in the same room, they were all in incubators attached to sats machines. Now they are strapping 2 year olds, strutting their stuff and fighting over the Tiny Tots cars.
Childhood crises – what effect do they have on parenting?
How much do childhood crises like prematurity, illnesses and serious accidents influence the way we parent our children? It’s an interesting question and one that I’m thinking more and more about as my baby becomes a little girl.
National Bereaved Parents Day
Today is National Bereaved Parents Day, raising awareness of all parents who have lost a child of any age, and from any circumstance. This includes still births, miscarriages and infertility, as well as neonatal deaths and child deaths.
Miracle girl
It was my little girl’s birthday this week. She technically turned 2, though if she hadn’t been born 15 weeks early, she wouldn’t have been celebrating her second birthday until October. It seems odd that she will forevermore have a summer birthday when she could easily have had an autumn one.
Preemie bumps and scrapes… Do they ever stop being triggers?
We took our ex preemie, who’s now nearly 2 years old corrected (see The corrected age conundrum for more information about corrected/adjusted age), to the zoo for the first time ever this week. A combination of her medical needs and issues, as well as covid restrictions, has meant we haven’t braved it until now, butContinue reading “Preemie bumps and scrapes… Do they ever stop being triggers?”
The fight to live
This hasn’t been an easy week. A preemie whose story I have been following for a while tragically passed away a few days ago. It was expected and inevitable, so did not come as a shock, but that did not make it any easier.
Creating community
When you become a mum life gets crazy even if you’ve had a straightforward pregnancy and birth and have a miracle child who sleeps, eats and poos when you ask it to.
Life of a Preemie Mum 