Just sharing this podcast episode from the Amos Madra Show which features me talking about Twenty-four Plus Six and why I wrote the book. Have a listen to find out my thoughts on how we can work together to improve neonatal care in the UK. Head to http://www.brettbooks.co.uk to buy your copy of Twenty-four PlusContinue reading “Compassion in care makes all the difference”
Tag Archives: family bond
Love through plastic
Our eldest daughter was only 3-years-old when her sister arrived in the world 15 weeks early. It had the same effect as a meteor, crashing into the middle of her world and obliterating everything she knew to be normal. Overnight, she traded her carefree Frozen games for the tubes, wires, ventilators and incubators of neonatal intensive care.
Medicalising motherhood
“I sighed deeply, exhausted and defeated by the realisation that feeding my child, the most primal and natural role that a mother can try to fulfil for her baby, would, of course, be yet another clinical event.” Excerpt from my upcoming memoir.
Neonatal Intensive Care Awareness Month
September is Neonatal Intensive Care Awareness Month #NICUAwarenessMonth when people from around the world come together to show their support for families with babies in the neonatal unit. The aim is to honour families experiencing a stay in neonatal care, and those in the medical profession who care for them. My daughter spent 3 monthsContinue reading “Neonatal Intensive Care Awareness Month”
How can having a baby in neonatal care affect your mental health?
Families with babies in neonatal care can struggle with their mental health. Parents with a premature baby are 50% more likely to experience psychological distress compared with parents who do not spend time on a neonatal unit.
Official discharge from neonatal care
Today is a day of celebration in our household, for after 2 long years our daughter has finally been discharged from neonatal care. Born at just 24 weeks, she spent 150 days in 4 different hospitals before coming home in November 2019. She battled metabolic bone disease, chronic lung disease, sepsis and meningitis.
Fragility
There’s been so much focus on Covid-19 for so long that it’s easy to forget how a common cold can be just as tough for a preemie to deal with. What amounts to a snotty nose and a bit of a cough for most of us can be enough to land a preemie back in hospital on oxygen, antibiotics, nebulisers, steroids and worse.
Preemie reunion
Last Wednesday we attended a reunion of the preemie babies who were in hospital at the same time as our little girl. The last time these children were in the same room, they were all in incubators attached to sats machines. Now they are strapping 2 year olds, strutting their stuff and fighting over the Tiny Tots cars.
Childhood crises – what effect do they have on parenting?
How much do childhood crises like prematurity, illnesses and serious accidents influence the way we parent our children? It’s an interesting question and one that I’m thinking more and more about as my baby becomes a little girl.
Guest blog from Ethan Ryan
Today’s post is a guest blog from Ethan Ryan whose son, Oliver, was born extremely prematurely during covid lockdown. Oliver very sadly passed away a few months after he was born and in this blog Ethan talks about how he helped his daughter, Rose, through her grieving process.
Life of a Preemie Mum 