Just sharing this podcast episode from the Amos Madra Show which features me talking about Twenty-four Plus Six and why I wrote the book. Have a listen to find out my thoughts on how we can work together to improve neonatal care in the UK. Head to http://www.brettbooks.co.uk to buy your copy of Twenty-four PlusContinue reading “Compassion in care makes all the difference”
Category Archives: My Journey
Publication Day!
It’s finally here! Today, 24th October 2023, is publication day for my debut memoir Twenty-four Plus Six! It’s amazing to hold a physical copy of the book in my hand. If you haven’t had chance to order your copy yet, just pop into your local bookshop and ask them to order it for you, or purchase online fromContinue reading “Publication Day!”
Love through plastic
Our eldest daughter was only 3-years-old when her sister arrived in the world 15 weeks early. It had the same effect as a meteor, crashing into the middle of her world and obliterating everything she knew to be normal. Overnight, she traded her carefree Frozen games for the tubes, wires, ventilators and incubators of neonatal intensive care.
Scars on the mind
“My face conveyed the words I didn’t speak. [The consultant] may as well have been telling me how he preferred his coffee or where he liked to go on holiday because he had lost me after the word ‘fractured’. The tiny baby in front of me, my baby, baby Amalie, had not even reached her due date and already had a broken arm.”
Medicalising motherhood
“I sighed deeply, exhausted and defeated by the realisation that feeding my child, the most primal and natural role that a mother can try to fulfil for her baby, would, of course, be yet another clinical event.” Excerpt from my upcoming memoir.
Neonatal Intensive Care Awareness Month
September is Neonatal Intensive Care Awareness Month #NICUAwarenessMonth when people from around the world come together to show their support for families with babies in the neonatal unit. The aim is to honour families experiencing a stay in neonatal care, and those in the medical profession who care for them. My daughter spent 3 monthsContinue reading “Neonatal Intensive Care Awareness Month”
Poems of prematurity
My niece, Rosie, is only 22 and has written some beautiful and powerful poetry in the last few years. She’s kindly allowed me to post the following two poems on my blog because they are meaningful in the context of prematurity.
Neonatal nurses week 2021
Last week, September 13th-19th, was Neonatal Nurses Week. A few nurses stand out for me from our own NICU journey across 4 different hospitals. Firstly, Rebecca, whose emotional intelligence and insight was invaluable more than once during the first 6 weeks of our daughter’s life.
Official discharge from neonatal care
Today is a day of celebration in our household, for after 2 long years our daughter has finally been discharged from neonatal care. Born at just 24 weeks, she spent 150 days in 4 different hospitals before coming home in November 2019. She battled metabolic bone disease, chronic lung disease, sepsis and meningitis.
Fragility
There’s been so much focus on Covid-19 for so long that it’s easy to forget how a common cold can be just as tough for a preemie to deal with. What amounts to a snotty nose and a bit of a cough for most of us can be enough to land a preemie back in hospital on oxygen, antibiotics, nebulisers, steroids and worse.
Life of a Preemie Mum 